Wednesday, September 3, 2008

Updates

I haven't been able to write in a long time. I've been very busy with work, school, kids...you name it.

Calen's doing good in school. I'm not feeling satisfied right now for some reason. I don't know what my problem is. I'm still pushing for ABA therapy. Lisa Highfield will be out of her office for the next few weeks due to surgery. Her replacement called this morning and I spoke with her about the ABA therapy. I wanted to know if Mrs. Highfield spoke with Brandy from Behavioral Intervention Services in Huntsville and if so, what was said. If she decided not to get someone in for this, then I want her to tell me why. My next step is finding an advocate and approaching the school board. After that (as long as this doesn't take too long) I will try to get him into Handy Headstart in Florence until I can have an IEP meeting with one of the schools in Huntsville or Madison and get my child to the ABA center through the system there.

Calen made 2 attempts to talk. He tried to say "mama" by saying "mmmmaaaaa" and when I gave him his shoes to put on, he said "shhhh". He was trying to say shoe. He picks up on the songs quickly at school. He hums them all the time. The teacher said she was working with him on colors. She said he would pick the correct color about 40% of the time when asked. I was blown away!!!!! The funny thing is that he was picking up on it while she was SINGING IT TO HIM!!!! She's going to work with me on her teaching techniques so I can work with him at home. I've also got Dr. Huffman-Parker to write a prescription for Occupational therapy so he can receive it through the school. It was faxed this morning.

He started the nystatin a couple of weeks ago. He just finished going through the "die-off" process. It was hell on him. He had diarrhea from Thursday to Sunday. He vomited twice, and refused to eat. I came close to taking him to the hospital when he vomited in the middle of the night, but he went right back to sleep. I decided to wait for morning and if he didn't improve, I was calling Dr. Kalb and taking him to the hospital. He was a little better the next morning. I made him some gf/cf banana bread muffins. After he ate a couple of those, he perked up and began to play. After that, he slowly regained his appetite and his poop was better. He was having very watery bowel movements every 15 minutes! Thank God, he is all better. I would not let up off the medicine though. We just kept going. Praise God.

Kylia will be 2 years old next Monday (Sept. 8). I can't believe my baby is going to be 2! It seems like yesterday I was getting ready to have her. Her birth was a scheduled C-section. I remember I came to ECM and waited in the Radiology waiting area. I was reading the Times Daily about a body being found in a corn field when they called me back for my amniocentesis. I was looking at some videos I took of the kids a year ago. Time flies!!! With tears streaming I watched those videos and was amazed at how much they have grown and changed. Now, she is mommy's helper. She brings me diapers when she wants to be changed. She's always saying "cookie?" and asking "What's that?". Every 2 minutes, I'm hearing "MOMMY!!". I sometimes feel like I'm going to go crazy, but I can't help but love it. That is such a sweet sound hearing my child call me mommy. One day, Calen passed gas. It was pretty loud. Kylia looked at me with a look of disgust and yelled "EWWWWW.....it stinks!" I thought I would die laughing!! LOL Anyway, I ordered Kylia's birthday cake mix from allergyfoods.com so that Calen can eat, too. It's a chocolate cake. I don't know what I'm going to do about frosting just yet. I know some can be made from powdered sugar. I will find out something. Her party will be small. I have so much on me that any little extra thing is pretty much a hassle. I'm thinking chips and apple juice and chocolate cake for the menu. I can't invite too many since I can't afford much. It will be nice to have family over though. I don't have enough chairs for people to sit. I don't really have anywhere for the kids to sit either.

As for the lining up of the remotes I mentioned earlier, I haven't seen him do that anymore. I informed his teacher, as well as Dr. Griffith. Our appointment with Dr. Griffith is this Friday. I will try to blog more often, if I can.

School for me is going great. I'm so excited! I've had a few stumbling blocks. For example, my English book is out of stock, so I'm missing deadlines left and right for my class. I informed my teacher so she knows what's going on. My math class has tests that must be proctored, so I will contact Mr. Thompson from NWSCC and see if he can help me out.

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