Friday, August 22, 2008

Improving Social Interaction

This is Calen's first full week of preschool and I have to say I am pretty pleased. Calen's teacher takes her time to fill out a sheet about Calen's behavior during each activity of the day. I know exactly what type of day he had and what he did. She even brought a digital camera and took photos of Calen during one of his attempts at social interaction with one his friends named Ava. She really is a sweet, kind, gentle person....she is perfect for working with little kids. I'm glad to have her as my son's teacher. As for his social interaction, his teacher told me that while on the swings, he was swinging next to a little girl in his class. She would look over at him and laugh...and he did the same thing!!!! He would look over at her and just giggle!!!! His eye contact has improved a great deal. He also turns to look at you when you call his name! I'm so excited and proud of the progress my baby is making. I've also received a report saying that the temper tantrums have decreased dramatically. At first, he would have a meltdown when it was time to change activities such as coming in from the playground. They would have to pick him up and carry him inside the school building. Now, he walks with the class back inside when playground time is over. As for lining things up, I haven't seen him do that anymore. I've been watching closely. Calen's teacher (Mrs. Herrmann) told me that they don't strap him in the chair for circle time anymore. One of the para-professionals sit with him and helps him to stay focused on the activities. She says that sometimes he is just too full of energy and wants to get up and kinda roam around never leaving the circle (an improvement because before he would leave the circle and go off and play by himself) and so they have to put him in his favorite chair, but that isn't too often. He's even started humming one of the songs they sing about colors. It's a song I've never heard, but Calen picked it right up and started humming it. GOD IS WORKING ON MY BABY!!! I TOLD YOU THIS WON'T CRIPPLE MY SON....I CLAIM VICTORY FOR CALEN AND GIVE GOD THE PRAISE FOR IT!!!!!!

Friday, August 15, 2008

A New Behavior

On Wednesday evening, I noticed Calen concentrating on the TV remotes. At first he was banging them together which not out of the ordinary. Then, I noticed he would lay them down end-to-end. Then he would bend over and then squat as if he was checking something. Then he would stand back up and adjust the remotes......HE WAS LINING THEM UP. My heart was broken. This was something that he had never done before. He was working so hard trying to line them up perfectly. I sat there and watched him with tears streaming. Today, I called Dr. Elizabeth Griffith. She is the psychologist from the UAB Sparks Clinic in Birmingham that diagnosed Calen this year with autism. She asked if he had lost any of his skills, and the answer was no. She asked if there were any other new behaviors and I told her yes...he's biting himself and showing strong preference for tight, closed-in places. She said these behaviors usually manifest themselves around 3 and 4 years of age. It's just the course of the autism. She told me to watch him carefully to make sure he doesn't lose any skills. Losing skills is something to be afraid of. She asked about how things were going here, and I told her the lackluster help we've been getting. She made an appointment for September 5th at 10am for us to come to Sparks Clinics. She wants to see Calen and work with me on some things we can do at home to keep him engaged so he won't resort to those repetitive behaviors.

I went to pick Calen up today from his preschool. I talked with the teacher this morning while dropping him off about his vision. Calen is near-sighted and has astigmatism in both eyes. During circle time, he was strapped into his favorite chair and biting his fingers. His chair was OUTSIDE the circle. I talked to her about this and informed her of his vision problems. I stated that he would probably be more apt to pay attention if he could see and actually be IN the circle instead of outside it. When I picked him up this afternoon, he was in his favorite chair INSIDE the circle. That was all I asked....include Calen, too. Then there was another problem....he was in a great spot inside the circle, but he was allowed to play with a couple of strings of beads. He was now given something to distract him while the other children were singing and participating with the circle time activities! That defeated the whole purpose of my request!

Tuesday, August 12, 2008

Calen's First Day

Calen enjoyed his half-day of preschool on Aug. 11. He had a few tantrums when switching from one activity to the next. He also became upset at leaving because he had to put away toys. He found a string of purple beads that he kept running along the train tracks and making them go through the tunnel. He pitched a bit of a fit when having to put them away. I can see a little regression in his actions since May, but all I can say is I did the best I could to help him over the summer. If my application for a home from Habitat for Humanity is turned down, I will resume my quest to leave this area. I blame the lack of services for his regression. I feel that maybe if he had the proper help during the summer, he wouldn't be going through this. I don't know. I just want to make sure I'm doing my part as his mom before I go blaming someone else. I'm so sick of feeling powerless.

I bought some gluten-free muffin mix from Valley health food. I didn't have any dried fruit to put in it so I used McCormick's sugar cinnamon. It tasted pretty good! Calen loves them. It made about 22 muffins. Well...I didn't try to make muffins. They're more like cupcakes. I let the kids have a few while fresh from the oven. That bought the number down to 16. Now, I have the rest for reserve just for him so he can have 2 per day at school. I also purchased gluten-free baking mix. I plan to make him some banana bread using the recipe on the back of the box. I finally have the non-aluminum baking powder, so we're ready to roll. I just have to get some bananas. I know he misses the texture of breads.


I finally received an e-mail from Dr. Kalb, and a phone call from the Wellness Pharmacy in B-ham about Calen's Nyastatin. It's on its way. I've also contacted my children's dad, who is trying to get another job to send me money every pay period so I won't have to call and "ask" for it.

I've also got great news on other things going on. I applied for a home through Habitat for Humanity. They sent a nice couple out to take a look at my apartment. They also made a list of everything I reported wrong with the place. They said they would write up the report and turn it in. I'm not sure when to expect word. I'm pretty excited about the thought of paying a house payment instead of rent. How great it would be to be able to give something to my children...a place to grow up in and call "HOME". It will be hard on me to leave the apartment we're in now. I'm such a sentimental fool, but that was the place I bought my babies to when they were born. First steps, first words...first everything took place in our apartment. It will be so hard to let it go, but so wonderful at the same time. New memories will be made in our new house!!! I will have to work a total of 4oo "sweat equity" hours. 200 of those hours can be worked by friends/family. The other 2oo has to be worked by myself. Since I am a single person, 100 of my hours can be worked by another person I pick. I can work a few hours on a construction site helping to build other homes for families, and I can work in their thrift store. I don't feel comfortable asking other people to help work these hours, so I'm bracing myself to have to do all 400 alone. I will ask others to help, but I'm not doing it with expectations. Others have jobs and responsibilities and children just like I do. I can rely on myself if I have to. I just want to make sure someone is available to keep my kids while I work these hours.

I'm ready to start my classes with UA! At first, it wasn't looking too good. All the classes were closed! My sis, who attended UA before, told me to speak with the teachers and ask them to let me in. My advisor told me to take History, Math and English classes. I managed to snag the English class, but the rest were closed. I sent an e-mail to the History and Math teachers. The Math teacher, Mr. Zhijian Wu, told me "no problem" and let me in right away. I'm now signed up for MTH110 (Finite Mathematics). Will be in touch with Mr. T on that one! The other teacher, Mr. Jonathon Hooks, is "hesitant" about expanding his American Civilization Since 1865 class. He asked me to find other classes and if I can't, he would consider letting me in his class. I kept digging and found a class that sounded interesting...Principles of Human Geography with Jeffrey Richetto. I signed up for it. Now, it doesn't matter if I hear from Mr. Hooks. I will have 9 hours and I won't lose my financial aid. If I get good news from Mr. Hooks, I may drop the Human Geo. class since I don't think it would count toward my degree. I prefer to take the History class. My advisor told me that I had 60 hours transferred over from NWSCC. All I have left for my Bachelor's is 60 hours....I hope I didn't misunderstand because I'm in shock with that bit of news.

Friday, August 8, 2008

Parent Meeting

Yesterday was the parent orientation at Howell-Graves from 6pm to 8pm. My children and I were the 1st to arrive. I really didn't want to bring them, but I thought I'd like to see how Calen would react to this new classroom. Mrs. Herrmann told me the building was between the elementary school and the BOE building. I passed by it several times because I thought it was a storage building. I cannot believe that these kids will have class in this tiny storage shed of a building. Not to mention the lack of security...anyone could walk in. I HATE the new classroom. I plan to speak to Mrs. Highfield to see why these children are in this storage house and what are their plans for next year concerning a classroom. It's almost as is their "contagious" or something. I know there's a logical explanation for it, and boy would I like to hear it. Now, I wish it was still at Highland Park. I'm going to miss the walks Calen and I would take hand in hand down the long hallway to go get his breakfast. I would watch him as he walked down the hall taking in everything and everyone we passed. He was so cute as he looked at everything. Every now and then, he would look up at me. I could cry just thinking about it. Now the food will be brought to the children on a stupid cart.

Anyway, I couldn't stay for the meeting. It was a disaster having my kids there. Kylia pooped on herself and I came without diapers or wipes. Calen was overly tired and was misbehaving terribly. Then, the teacher passed out folder filled with paperwork for us to fill out and told us that we can fill it out anytime and get it back to her. I took it as though the meeting was about to begin but NOOOOO...she just stands there while the other parents fill out the paperwork right then. I'm growing more and more impatient thinking "She just said to get it back to her when we can. Why isn't she starting the meeting?" I asked her what she was going to cover because I had questions and I also wanted to know what the other parents had to say about things. Of course, I can't stay. My kids disrupted everything. I was beyond angry at my babies. I put them in the car and just drove around to calm myself down. I was tired, hungry and wanting to attend that meeting. Calen was the one that had me the most upset. He really showed out. His first half-day is on the 11th. I plan to turn in the paperwork and talk to her one on one (hopefully...if she has time). I may just have to try to catch her at home. I am very frustrated at the moment.

Thursday, August 7, 2008

Accepted

I finally received word.....

I was accepted by the University of Alabama in Tuscaloosa!!

Tuesday, August 5, 2008

Medications

First, to Mr. T....I stand corrected. The quote I received over the phone about the fish oil and the actual price when I showed up at the store to buy it was different. It was something like $23 where it is $20 online. Thanks for the info!!!

Also, I wanted to correct the mention I had made about the website I use to buy Calen's medicines. It IS NOT kirkmanslabs.com. It is spectrumsupplements.com
The site is simple and great to use. I would encourage anyone to check it out. My favorite part is the detailed description of the products. I ordered the meds Calen has ran out of this morning. I was told by the DAN! doc to buy the Kirkman's Super Nu-Thera liquid multi-vitamins online. The price is outrageous....$50!! I compared the online brand to the brand I have for him at home and there is NO DIFFERENCE. I buy Love Bites for $16 at Valley Health Foods. They are gf/cf. Nothing in them is artificial, and my son loves them. So I won't switch. All the other meds will have to come from online purchases for now. I plan to compare meds and prices with more local health food stores. Valley Health Foods has officially been crossed off the list. Here is a list of Calen's meds:

Nordic Natural's Omega 3-6-9 lemon - for kids
(fish oil/fatty acids)

Peptizyde 90 ct with Rice Bran filler
(digestive enzymes that help in breaking down proteins)

B12 oral drops

B6 oral

Zinc

Bio-Max Buffered Magnesium Glycinate
(Glycinate is easier on the digestive system)

this taken from spectrumsupplements.com
Some individuals find some forms of magnesium difficult on the digestive system and as a result, difficult to absorb.
The use and effectiveness of magnesium supplementation is well documented. Magnesium is an essential mineral that is involved in many body functions as well as being a constituent of bones and teeth. It is essential for element of cellular metabolism and is an enzyme activator. Other body actions include: Magnesium relaxes nerve impulses and muscle contractions, Magnesium promotes relaxation and in the process may aid in restful sleep. Signs and symptoms of magnesium inadequacy can include fatigue, mental confusion, heart disturbances, irritability, weakness, muscle spasms, loss of appetite, insomnia or a feeling of weakness. The Physician's Desk Reference for Nutritional Supplements states that some recent data of inpatient and outpatient populations, suggest that magnesium deficits may exist in from 12% to 40% of individuals.

Lactobaccilus Acidophiles (Calen's doc wants him to have more strains, so when this bottle is used up, I will order a different kind. I will talk further with him and post what we discuss.)

from the spectrumsupplements.com website
This species is recognized as one of the primary friendly lactic acid bacteria residing in a healthy gastrointestinal tract. Research over the past decade has shown that L. acidophiles possesses a number of important health benefits including:· Ability to adhere to the GI mucosa and colonize the intestinal tract· Supports the body's natural defenses (immunity) · Helps control diarrhea, or constipation · Helps alleviate occasional diarrhea or constipation

This last medicine mentioned was actually the cheapest at $13 per bottle for 120 count. The cost of all these meds is really adding up! My children's dad will be sending me some money. He said if he can't do it today, then I will definitely have it Thursday. We'll see.

Monday, August 4, 2008

Social Interaction Improvement!!!

Yesterday, August 3, 2008, my son did something I have NEVER seen him do before. My friend from work, Alicia, brought over a play kitchen for Kylia. Her daughter is too big for it now. She brought her daughter, Julianna, along with her. Calen actually walks up to this little girl with a huge smile on his face and gives her a really small hug. He stood there smiling in her face for about 30 seconds or so, then he walks away to play in his usual fashion...pretty much by himself. It was a major step for him and I am a very proud mom right now!!! God is moving for my baby. I give Him all the praise...

I can't remember how much I paid for the fish oil online. It was Omega 3-6-9 Junior for kids (lemon flavored). I think I paid somewhere around the $20 range. That's not including any type of shipping charges. Valley Health Food carries it for $17. I hope it comes in some sort of flavor. I have to puncture the soft gel tablet and squeeze it in Calen's juice. That would be gross if he had to drink unflavored fish oil. I'm still trying to get everything together because he has ran out of meds except for the new ones he's started. I order all the meds from kirkmanlabs.com I'm waiting to see what the deal will be with the Nyastatin.

I received a pre-registration pkg from Muscle Shoals schools. It had totally different dates from what Miss Herman told me about. I contacted her this morning and it turns out that the parents of the pre-k students weren't supposed to get those packages. I was the first parent she's heard from. She said she may have to get on the phone and contact the other parents because that will cause confusion. She said we have already completed paperwork and there was nothing for us to do but come to the parent-teacher meeting on the 7th. I was glad she called because I was so nervous. I don't want to mess up things for Calen's education.

Speaking of education...I still haven't heard from UA as to whether or not I am accepted.

In memory of my grandfather Mr. Robert Armstead, Jr

(known to his grandchildren and great-grandchildren as "Big Daddy" and is the reason Calen's middle name is Robert)
Happy Birthday, Big Daddy!! Life isn't the same without you. I miss being able to come to you for advice. I wish my children could have met you. I love you.

Friday, August 1, 2008

Our Trip To Franklin, TN

Calen's appointment with Dr. Kalb was yesterday. We were 15 min. late due to some bad weather we ran into. It was a short visit. I don't know how dr.'s visits work behind the scenes but it bothers me when I have to repeat EVERYTHING. It was as if he had forgotten what he had told me or vice versa. I was talking and at the same time thinking "did he bother to take notes from the last visit?" Anyway, Calen was put on zinc and B-6 along with Nyastatin for yeast overgrowth in the intestines. I asked if giving Calen this medicine would harm him if he didn't need it. He didn't give me a yes or no answer. He said that Calen exhibits all the signs of yeast overgrowth. I asked about testing Calen for it, and he said that a urine and stool sample would be needed. When I asked about the cost, he said the kit and the actual testing would cost somewhere around $500. Since the doc said that Calen exhibits the symptoms of yeast overgrowth, I said okay to the Nyastatin. He also stated that when Calen first starts this medicine, he will experience yeast "die-off" which will be uncomfortable for him. Doc said when this happens, keep giving him the medicine because it will eventually level off and Calen will not experience any discomfort anymore. It is temporary. I don't honestly feel comfortable giving my son something due to a "guess". I plan on calling Dr. Crenshaw from Infants' and Children's Clinic to see if I can set up an appointment and talk to her about my yeast overgrowth concerns and see if I can get him tested through her. That way Medicaid will cover the test, and I will KNOW whether Calen needs this medicine or not. I'm not at all comfortable with guesses. I also understand what the doc is saying though. Calen is an excellent candidate for yeast overgrowth due to his positive response to the gf/cf diet and his positive response to the meds. Usually when a child responds positively to the diet changes, that is a good indication that there is yeast overgrowth. I plan on doing more research on this matter. I also plan on hitting my children's dad up for some money. I'm just glad that it's all done for right now. We have to be back in 2 months. I just made an appointment for October 1st at 2:00 pm. I also talked with the ladies at Valley Health Foods in Muscle Shoals. They will start carrying some fish oil for children so that I can get it locally for Calen. They are doing their best to work with me. They are nice. I plan on buying Calen's meds there rather than ordering them online. I've used kirkmans labs online last time. All together with shipping he cost was about $80. That can almost be cut in half locally. As for now, I'm endorsing Valley Health Foods....that is, until they give me a reason not to.

On the way there I had to stop in for my favorite Starbucks treat...sugar-free cinnamon dolchi frappuccino. Calen got large fries and a Coke from McDonald's. On the way home we ran into another terrible storm that forced us to pull over in Athens. We waited for about 15 min. and was finally able to get started home again. My baby sis, Meka, picked up Kylia from daycare so that she and Reese (her son) can play together. Meka fixed me and Calen a plate of food for when we arrived to pick up Kylia. She's the sweetest sister ever. We sat around for a little while and chatted. David, my bro-in-law, showed me his new surround-sound system he bought. That thing is super nice! It sounds great! After that I had to head home and put them to bed. I was exhausted. My sinuses are completely stopped up with lots of painful pressure and I have a terribly painful stiff neck. My sis thinks I have the flu, but I don't think so. I took some medicine and came on into work. I'm about to take another dose right now. I look forward to the weekend. I'm in so much pain right now.